and they all talk - ongoing talk - just about you! Last Updated January 17, 2020. I had 36 lymph nodes removed so I still get swelling in my neck. No labwork has been done since I left the hospital. It's either from the thyroid meds, or from surgery, but I never feel strong hunger pangs and I never feel "full". I have also been sleeping 10-12 hours a night, blurred vision, and missed my period (first time ever - although I am 47 now so that can happen). In fact, I didn't sleep a wink the night it swelled up bad because I was scared I'd suffocate in my sleep. American Thyroid Association. Your provider may check your vocal cord function. Individualized optimal surgical extent of the lateral neck in papillary thyroid cancer with lateral cervical metastasis. But I don't know if it's because I also had 33 lymph nodes (including way up by my jaw) removed, or if I just suck at recovery. Ai J, Leonhardt JM, et al. Does it get better? There are two main categories of thyroidectomies: Total and partial. A retrospective analysis was performed on 246 patients with PTC who underwent total thyroidectomy and central neck dissection from 2004 to 2010. Zhang H, Hu S, Wang X, He J, Liu W, Yu C, Sun Z, Ge Y, Duan S. Technol Cancer Res Treat. Examples include foods with sauces or gravy, cooked vegetables, and casseroles. It isn't as obvious visually, but I know there is something not normal in my neck. Have questions about navigating your Inspire support community or need assistance from one of our Inspire Moderators? its hard not fluid Discuss what's on your mind with your healthcare provider. About 8 months later my TG was 9 un-stimulated. The thyroid gland wraps around and lays on top of lymph nodes (the central section is the biggest culprit of hidden lurkers) so that after you take out the thyroid, you are bound to have lymph node involvement in the area behind the thyroid where the cancer was found. BMI has dropped from 26 to 25. Complications are much less common and can include neck bleeding, permanent hypoparathyroidism that requires ongoing calcium replacement, and damage to nerves that can lead to long-term hoarseness and vocal changes. I had the procedure done again the next morning -- (which surprisingly hurt much less than the first one?) Please let me know how to keep my sanity after all of this. If you have any questions or concerns about your thyroidectomy, feel free to talk to your endocrinologist or surgeon. Its very expensive, but so is lymphedema treatment. If you are wondering what your scar may look like, the University of California Los Angeles has a scar gallery with photos of people who have had thyroid surgery at various points in the healing process. Fever of 101 degrees or higher. Thanks for listening, It feels scary. I feel like I'm becoming depressed. #oBTVLyno-JpG=_[k&\&.h8N/9 A lump under the chin is frequently associated with swelling around the chin, jaw, or throat. endobj Occurring in roughly one in 300 procedures, most hematomas occur within 24 hours of surgery, though research indicates they may occur later in 10% to 28% of cases. This can lead to a sore throat and the sensation of a lumplike something is stuck in your throatwith swallowing. I don't believe it is due to the RAI damage as I had these same aches before I was diagnosed and now they seem to be back 11 months after my TT and RAI. What should I be asking my endo about? The Annual International Thyroid Cancer Survivors' Conference and Regional Workshops, Download our free Low-Iodine Cookbook (PDF), Rally for Research and Thyroid Cancer Research Grants. My problem now is I am so confused and concerned because my actual thyroid and lymph nodes sent to be biopsied after the operation have come back as perfectly clear with no sign of cancer. undefined will no longer be visible to you including posts, replies, and photos. and transmitted securely. Thank you Katie! Give the compression garment they told you to use a chance. Is this normal? Has anyone else experienced this after surgery? My Doctor seemed puzzled which didn't make me feel any better. Yes, about a week after my TT (performed on August 4th) I had significant swelling on the right side of my neck below the stitches. Deep, noticeable lines on your palms and soles Meanwhile, in the past month, I experienced a slight swelling on the left side of my neck for which the doctor asked me to take antibiotics ( Ceftum 500 mg for five days) thinking it could be swollen lymph nodes due to some infection. Additionally, I have also been experiencing significant hair fall which is really disheartening. But as it grows, it can cause signs and symptoms, such as swelling in your neck, voice changes and difficulty swallowing. Identifying risk factors of lateral lymph node recurrence in clinically node-negative papillary thyroid cancer. It's almost in the same spot that the initial lymph nodes popped up when I was diagnosed. hashthy I had a TT a week ago and developed a large bump about 1/2" above incision site. A thyroidectomy is the surgical removal of all (total thyroidectomy) or part (partial thyroidectomy) of your thyroid gland the butterfly-shaped organ in your neck. My surgeon has a really thick accent, so I still am not sure exactly what he said he didbut I *think* he said he took out the front lymphs. Last night I kept waking up thinking I was choking. The surgeon says they may not find anything but because my thyroid is out there is a better chance of picking up something. Hi, I'm 4 months out of surgery, TT and 143 lymph nodes removed from my neck with 26 being cancerous. I was reading some of your other posts and saw that you have been doing well after your procedure. I would have thought that all swollen LNs detected earlier via US in Oct 2012 would have been removed during TT. It occurs in roughly one in 2,000 surgeries. Using pain medication after surgery may reduce discomfort, making it easier for you to keep moving your neck so that you have less stiffness later on. Coming to a Cleveland Clinic location?Hillcrest Cancer Center check-in changesCole Eye entrance closingVisitation and COVID-19 information, Notice of Intelligent Business Solutions data eventLearn more. Keep in mind, as well, that the likelihood of a complication occurring is much less with an experienced surgeon. Anderson CK, Miller OF. 2017;76(5):871-8. It does get better though, just slowly. You have a higher risk of developing thyroid disease if you have one of the following: Vitiligo There is still some swelling and redness and it just seems to bother me a lot more. I use it 3-5 times a week.and I am almost 3 years out. Never ignore your gut feelings on how you feel and if you think you'll forget things to ask when you see your endo questions or just exactly how your feeling write it down that's what I should of done. You may remain in the hospital overnightor be allowed to return home if you had outpatient surgery and are stable. Lift up I am also needing to prepare for the RAi scan in 3 weeks time and was told not to take any supplements whatsoever, does anyone know if its still ok to take antidepressants while preparing and undergoing RAI? Thyroid storm, also called thyrotoxic crisis, is a life-threatening medical emergency caused by very high levels of circulating thyroid hormone. They commonly include: Most often calcium levels improve in a few weeks but may continue to be low for up to six months. Feb 14th, 2012 had massive dose of RAI. Clipboard, Search History, and several other advanced features are temporarily unavailable. I know that I do have to stay overnight and I am expecting only to have a TT only. It feels uncomfortable to touch, like size of golf ball and seems to swell even more when touched making it odd to swallow.is this normal? I'm seeing my surgeon in two weeks, and can't wait to tell him what a lousy job he did on me. Surgeons perform thyroidectomies to remove goiters and thyroid nodules and to treat thyroid cancer. What will be my physical restrictions following surgery? The excess activity could increase your chance of developing a hematoma or keep your wound from healing properly. You may have gained or lost weight for no apparent reason. I was shocked that she uttered those words and I excitedly told her I had been obsessively researching this treatment - but wasn't sure re: RAI. Just too much holding against all of the neck structures. However, it is now May 2016 and my neck in that area still feels very odd. I had no idea it would be like this- the internet makes TT seem like a piece of cake. Factors predictive of the development of surgical site infection in thyroidectomy - An analysis of NSQIP database. #,OuLjRhbTwZF'! Otolaryngol Head Neck Surg. Thanks! I have been taking serlife(zoloft) for years and don't want to just stop it. My doctor and staff keep assuring me that this is all normal considering the extensive surgery that I had. Eur Thyroid J. Find out why dark spots appear and what can fade them. But I do have clearly defined swelling - mostly above the incision, but also below. So i'm currently finishing up my isolation from RAI (150 dose) and the scar is healing nicely. I had my TT on June 2nd (a week ago) and my neck feel and looks bulgy. Bleeding into the tissues surrounding the neck, which is known as a neck hematoma, is uncommon, but is potentially life-threatening if not diagnosed and treated promptly. I haven't had RAI yet because I was given iodine in a CT after surgery and was told I had to wait 6 months. As with any surgery, it's normal to have questions, concerns, and maybe even feel a little bit of anxiety going into it. Prediction of Cervical Lymph Node Metastasis Using MRI Radiomics Approach in Papillary Thyroid Carcinoma: A Feasibility Study. But the words were always in fine print, seemed only as a last resort. Some people have to stay in the hospital overnight and can leave the next morning. I am 20 days post-op total thyroidectomy with central and left neck lymph node removal. I am very frustrated with my voice and breathing issues but its not all the time, I can speak well when rested and during regular conversation. I am the one who suggested doing it sooner rather than later, because we are already in quarantine as a society with the virus, so I thought~ lets just do this now while Im in the habit! I am so grateful for all of the information that is exchanged on this forum, and wanted to share my recent experience at Mayo with Ethanol Ablation. Left side surgical was hard & slightly numb to feel anything. As far as they've told me, its not one of the more aggressive variants, although when I asked about specific pathology, I got "it really doesn't matter, treatment is the same." I don't go to the MD until next Friday. I still have swelling at the incision site. I was told by my endo you have to heal internally also you mentioned that you have a post op appointment soon voice your concerns to him I hope you feel better soon hugs x. So now what could i do .plz give suggestion I was informed that this is expected from working so closely to the nerves that control the tongue and facial movements however, this has never happened to me in any of my prior surgeries. Do anyone have problem sleeping after the throid surgery.It seem like every position I try might hurt my surgery . I know how frustrating it is to be so swollen but if you do massages and compression garments it will go down. I was just wondering if anyone has experienced pain to the touch in their neck weeks following a neck dissection. For these, please consult a doctor (virtually or in person). Hives The four parathyroid glands lie on the back of the thyroid gland and are sometimes injured or removed during surgery. Anatomic characteristics, identification, and protection of the nonrecurrent laryngeal nerve during thyroidectomy.
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